Monday, 1 October 2018

Can someone give me some advice on what I should do next?


I've been posting here frequently the past few weeks about my situation-- basically, three weeks ago I started getting really horrible pain that felt like my intestines were seizing up in a charlie horse, plus random stabbing/spasming pains all day long. I was also getting frequent nausea, extreme fatigue and fevers.It got worse and last week I finally went to the hospital after my entire intestines seized up in this horrible pain.Long story short, I've been told by both my regular gastro and the doctors at the hospital that everything looks "normal"--my CAT scan, blood work, urine and stools. They sent me home with an anti-nausea medicine and Bentyl for spasms (which I couldn't even get filled because the prescription they gave me was in someone else's name--I've been too sick to go back and get it corrected).You guys, everything is NOT normal. The pain is near constant and I can't even sleep at night. I know I'm going to have to stop eating again because the pain is just excruciating--I feel like I've been shot in the gut (on top of these horrible spasms).Also I've been dealing with some pretty horrible acid reflex lately and my throat hurts so bad I can barely swallow. As a result I haven't been able to even drink much which is obviously bad.I've already had a panic attack just thinking about continuing on like this since all the doctors keep saying it's nothing (the ER doctor said he could give me steroids or antibiotics but based on my scan he didn't think it was necessary/would help).I'm going to make another appointment with my doctor because I have no other choice, but I don't even know where we can go from here. I just had a colonoscopy 3 month ago which she said was fine, but she did say the amount of scar tissue from my surgery made it so she couldn't go up as far as she wanted. This makes me think it might possibly be scar tissue related, especially since my mom's friend (who also has IBD and has had multiple surgeries) said that her scar tissue grew out and attached to her stomach, pulling it out of place and causing her horrible pain, and that it sounds like that might be what I'm experiencing. She also said that they couldn't see it on a scan and could only see it once they opened her up (I'm not sure if this is accurate or not).Can anyone give me any advice about what I should say to my doctor? I just feel like I'm not getting through to her about how I'm feeling and like I said, I know I can't keep going like this. I'm starting to get really worried and I just really don't know what I should ask for at this point.Thanks to any advice/support, I'm pretty beside myself right now.

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